Advocating for Others

Day 12

When I first began my recovery, all I thought about was survival—finding my voice, being understood, and getting through the day. I never considered I would become an “advocate” of sorts. But over time, I’ve learned that advocacy can start quietly, with one small act of courage: speaking up for yourself.

From Teacher to Self-Advocate

For years, I was an Adult Ed teacher. I always encouraged my students to speak up for themselves, to ask questions, and to express what they needed. That same spirit became essential in my own recovery.

At first, I had to learn how to advocate for myself—to ask for patience, to explain my communication challenges, and to make sure I was included in conversations and decisions.

As I grew more confident, that desire to help others naturally followed. I realized that by sharing what I’d learned, I might make the path easier for the next person.

Sharing My Story

My advocacy began with this blog. Originally, it was simply a way to document my progress. But as I wrote, I discovered that my words—imperfect as they sometimes are—had power. Some people with aphasia began to read them and comment. They told me my story helped them feel less alone and gave them hope.

That’s when I understood: sharing your story is advocacy. It helps others, but it also helps you see how far you’ve come.

Becoming an Aphasia Advocate

Recently, I became an Aphasia Ambassador with the National Aphasia Association, looking for ways to help even more. I also joined the Peer Befriending Program with National Aphasia Synergy, where I connect with people just beginning their journey. It’s rewarding to offer encouragement, practical tips, and understanding from someone who’s been there.

One of my first advocacy projects was deeply personal: creating a video for the hospital where I was treated after my stroke. In it, I shared my experiences—both positive and painful—especially around how difficult it was when I couldn’t communicate and staff didn’t know how to respond. That project was my first real step into formal advocacy. It felt vulnerable, but also empowering.

How You Can Advocate, Too

Advocacy doesn’t have to mean giving speeches or joining organizations (though you can!). It can be as simple as speaking up for yourself and helping others understand aphasia.

Ways to start small:

• Explain your needs clearly using your ID card or a note.

• Educate others—tell friends, coworkers, or community members what aphasia is and how to communicate with you.

• Share your story through a blog, social media, or your local support group.

• Offer encouragement to new survivors or caregivers.

• Join or volunteer with national or local aphasia groups.

  
  

Every small act helps build awareness and changes how the world sees communication challenges.

Why It Matters

Advocacy gives meaning to experience. It turns struggle into purpose. When we speak up—for ourselves or for others—we make the world a little more understanding, a little more patient, and a lot more inclusive.

Daily Reflection

Think about one person or place where you could share your story or offer support. It might be a friend newly diagnosed, a speech group, or even your local hospital. Your voice matters—spoken, written, or typed.

💬 Today’s Takeaway Tip

Sharing your story helps more than you know.It shows how far you’ve come, and it gives others hope to keep going.

#blogboost